Rachel was supposed to begin her volunteer work with the SMART program last week, but she had the seizure day from hell, and she was sick, so we didn't want her to a) spread the virus to other volunteers and children, or b) become so rundown that it would take longer for her to recover.
So, tomorrow morning will be Rachel's first day helping kids read. She asked me to please keep Stewie for her, at least on this first day, so that she can both focus on her duties, and make sure that nobody is allergic to dogs before having him there. I'm okay with that, and it shows that she's using good judgement and working out what to do.
It's now been a week since the last seizure. Rachel has been sort of fussy today, and is extra tired. I'm hoping it's just that she's still recovering from the virus, and the weather is lousy, but I'm afraid that she may be kindling up some seizure activity. Mornings are usually "safe" as far as being able to avoid seizures, so I'm not too worried about tomorrow, as her reading time begins at 9:30, and is only 90 minutes long. Still, she'll be more than ready for a nap by the time she's done.
Naps are just a part of the package around here. Rach can occasionally go a full day without one, but that's pretty rare, and this last week she's been having an extra nap in the afternoon every few days. This afternoon she even asked to take a hot shower-bath, which is something so rare that it was shocking. Usually I have to remind her to do the kind of self-care that most of us just do automatically. Afterward, she climbed into bed for a second nap.
Our lives revolve around Rachel's seizures and energy levels. It can be frustrating, but we learned long ago that it does no good to fight it. Plans get changed sometimes on a moment's notice, and we never leave home without emergency medications, a vape pen, and a towel, just in case of seizures. These things have become so common now, that it's just not something we think about much. It's like grabbing my purse and jacket before walking out the door.
Just a few more aspects of life in e-land.
No comments:
Post a Comment